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Arch Dis Child Fetal Neonatal Ed 81:F84-F91 doi:10.1136/fn.81.2.F84
  • Original article

Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe

Table 7

Unit policy about parents’ participation in ethical decision making for their babies

Parental options France % (CI) Germany (ex-BRD) % (CI) Germany (ex-DDR) % (CI) Great Britain
% (CI)
Italy
% (CI)
Luxembourg % (CI) Netherlands % (CI) Spain
% (CI)
Sweden
% (CI)
They may choose the course of action for their baby 0 0 0 11 (2–47) 0 0 0 0 0
They may take part in the decision 0 54 (30–76) 40 (15–73) 78 (44–94) 19 (8–39) 0 50 (50–50) 35 (20–55) 26 (18–35)
Their wishes are indirectly sounded out and taken into account 100 44 (23–68) 60 (27–85) 11 (2–47) 48 (31–66) 100 50 (50–50) 47 (29–66) 68 (59–76)
They do not take part in the decision but are informed about it 0 2 (0.5–9) 0 0 22 (10–42) 0 0 12 (4–30) 6 (6–6)
There is no policy about this issue 0 0 0 0 10 (3–29) 0 0 6 (1–24) 0

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