rss
Arch Dis Child Fetal Neonatal Ed 2001;85:F8-F12 doi:10.1136/fn.85.1.F8
  • Original article

Lingering death after treatment withdrawal in the neonatal intensive care unit

  1. H E McHaffiea,
  2. A J Lyonb,
  3. P W Fowliec
  1. aMedical Ethics, Department of Medicine, University of Edinburgh, Edinburgh, Scotland, UK, bSimpson Memorial Maternity Pavilion, Edinburgh, cNinewells Hospital and Medical School, Dundee, and Perth Royal Infirmary, Perth, Scotland, UK
  1. Dr McHaffie, 12 Mayburn Terrace, Loanhead, Midlothian EH20 9EJ, Scotland, UKhazel{at}mchaffie.f9.co.uk
  • Accepted 20 December 2000

Abstract

OBJECTIVE To explore parents' perceptions of treatment withdrawal and the dying process.

DESIGN Face to face interviews with 59 sets of parents of 62 babies in the East of Scotland three months and 13 months after death.

RESULTS 22% of the parents expressed reservations about the length of the dying process, which they reported in these instances had taken from three to 36 hours. Deaths that medical teams had predicted would be quick had, according to the parents' recollections, taken from 1.5 to 31 hours. When a baby died swiftly, this seemed to confirm the wisdom of the decision to stop. When babies lingered, doubts were raised.

CONCLUSIONS Parents need to be adequately prepared for what may happen after treatment withdrawal. The debate should be reopened about the best way to manage protracted deaths in line with parental need.

Footnotes

    This Article

    1. Abstract
    2. Full text
    3. PDF

    Responses

    1. Submit a response
    2. No responses published

    Register for free content

    The full back archive is now available for all BMJ Journals. Institutional subscribers may access the entire archive as part of their subscription. Personal subscribers will also have access to all content when logged in. Non-subscribers who register have free access to all articles published before 2006 right back to volume 1 issue 1. Register here to access the free archive of all BMJ Journals.

    Don't forget to sign up for content alerts so you keep up to date with all the articles as they are published.