Table 3
Outcome and neurodevelopmental follow up for survivors
| Subject | Neonatal outcome | Follow up age (years) Birth–June 1999 | Mental/physical skills | Residual problems to date |
| A | Alive | 16 | Normal. Minor speech | Nil |
| B | Alive (died in road traffic accident) | 2 | Normal before death | — |
| C | Alive | 14.8 | Normal. Minor speech | Nil |
| D | Alive | 15.5 | Normal. Immature hand/eye coordination | Nil |
| E | Died aged 4 weeks (candidal septicaemia) | — | — | — |
| F | Alive | 13.0 | Late walking. Good visual & language | Mild diplegia. Normal school |
| G | Alive | 12.5 | Normal | Nil |
| H | Alive | 11.4 | Normal | Nil |
| I | Died day 14 (inherited pyroglutamic aciduria) | — | — | — |
| J | Alive | 9.5 | Normal. Stridor. Aortopexy | Nil |
| K | Died day 7. Severe respiratory problems | — | — | — |
| L | Alive | 9.1 | Normal | Nil |
| M | Died day 7 (non-ketotic hyperglycinaemia) | — | — | — |
| N | Died day 1 (severe rhesus disease) | — | — | — |
| O | Alive | 9.0 | Delayed motor | Mild diplegia |
| P | Alive | 7.3 | Normal | Nil |
| Q | Alive | 7.5 | Delayed motor | Spastic diplegia |
| R | Alive | 7.5 | Normal | Nil |
| S | Alive | 7.0 | Normal | Nil |
| T | Alive | 6.8 | Normal | Nil |
| U | Alive | 6.4 | Normal | Nil |
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Six deaths were unrelated to brain pathology. Of the 16 survivors with isolated frontal horn cysts including subject B (late death): 10 had normal outcome and one (O) had mild diplegia (26 week gestation twin). Three subjects with additional subependymal haemorrhage that resolved had normal outcome. Two survivors who had mild cerebral palsy (subjects F and Q) had other cranial abnormalities.
